Organization
Muscular Dystrophy UK(MDUK)
Muscular Dystrophy UK is the UK's leading charity supporting over 110,000 people living with more than 60 muscle-wasting and weakening conditions, including Duchenne, Becker, and Myotonic Dystrophy. They fund pioneering research, connect families to specialist care teams, and campaign for equitable NHS access to emerging therapies.
About
Muscular Dystrophy UK has championed the rights and needs of people with neuromuscular conditions for over 60 years, founded by and working closely with affected individuals and families. They support people living with over 60 different rare muscle-wasting conditions across the UK.
What They Do
MDUK funds research into treatments and cures, provides grants for specialist equipment and home adaptations, and supports a network of Neuromuscular Care Advisors embedded within NHS specialist centres. Their information services include condition-specific helplines, an online community, transition resources for young people, and expert guidance on employment, benefits, and education. They actively campaign for timely access to approved gene therapies and other emerging treatments.
Who They Serve
MDUK serves people in the UK living with any of more than 60 muscle-wasting and weakening conditions, along with their families, carers, and the healthcare professionals who support them. Services span all ages, from early childhood diagnosis through adult transition and long-term disease management.
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